Raising awareness of, and supporting, young people with long-term health conditions
by Regan (she/her) “the quality of being easily reached, entered, or used by people who have a disability” My name is Regan I’m 21 and would like to talk about the importance of accessibility to me on my journey living with Multiple Sclerosis. To me, accessibility means independence, it means freedom. Initially, when I was … Continue reading Accessibility and Me
By Jenny Barron. Originally written as part of the Lost and Gained LUNA series. When I got diagnosed it felt like I had gained this huge weight of responsibility, like I had this massive load to carry around with me at all times. Luckily with Type One diabetes the advancement of the medication meant that … Continue reading Life with T1D: What I have Lost and Gained
By Amber Carey-Daw I originally became a part time student in April 2018, just three weeks before the start of my GCSE exams. It wasn't an easy decision to make, as many told me it would be detrimental to my exam results, something that as a perfectionist meant alot to me. But as my at … Continue reading Being Part Time in Education
“When your lifestyle is your medicine, changes to it can have a big impact on your quality of life.” Three years ago, at the onset of her chronic health issues, Sasha Donovan-Anns had lost a quarter of her body weight; this sudden weight loss made her very weak, having a negative impact upon her attendance … Continue reading Living with Fibromyalgia in Lockdown
By Billie Rae How are you feeling today? This can be a pretty loaded question at the best of times, and during a global pandemic it’s often downright scary, as if someone just asked you for the meaning of life. ‘How are you feeling today? Yeah, not too bad, just trying to get on with … Continue reading Lessons From Lived Experience: Coping With Emotions
Here is a round up of all of the recommendations, inspired by the idea of providing insight into aspects of life with a disability/chronic illness, that we made for April... Week 1. Wonder So what is it about? Auggie is 13. He likes spaceships, science and lives with his mum, dad and sister. Auggie also … Continue reading Book Club: April
Hey everyone! So, this is my first ever blog so bare with me on how well I do! I’ll start off with telling you a bit about me. My name is Rebecca, I’m 17 and I’m from Leeds. I am currently in college doing a level 2 media makeup and hair course. Pretty easy. Kind … Continue reading Not having a diagnosis: Becca’s experience
This blog post features Beth, Laura, and Ally from LUNA talking together (on video call because of social distancing life!) about their experiences of being diagnosed with long term health conditions. They talk about how they found this, and the similarities and the differences in their experiences. What was your experience of getting a diagnosis? … Continue reading Diagnosis Experiences: A Conversation Between friends
I’ve always been a chatterbox. People are often amused by the pace at which I can talk and the sheer volume of conversation. I always put it down to being an extrovert, just something that was quirky about me. Even as a child I had no problem nattering away to unsuspecting adults. I’d never really … Continue reading Being diagnosed with ADHD as a young adult: Ella’s experience
Hi! It feels very bizarre to introduce myself like this, but I’m Jamie, I’m 19, and I have OCD. I’ve been putting off writing this because I’m embarrassed both about having OCD and about being embarrassed. Go figure! In my title I’ve mentioned embarrassment and shame separately because in relation to my OCD, these two … Continue reading Obsessive Compulsive Disorder: stigma, embarrassment, shame.
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