Raising awareness of, and supporting, young people with long-term health conditions
by Regan (she/her) “the quality of being easily reached, entered, or used by people who have a disability” My name is Regan I’m 21 and would like to talk about the importance of accessibility to me on my journey living with Multiple Sclerosis. To me, accessibility means independence, it means freedom. Initially, when I was … Continue reading Accessibility and Me
By Jenny Barron. Originally written as part of the Lost and Gained LUNA series. When I got diagnosed it felt like I had gained this huge weight of responsibility, like I had this massive load to carry around with me at all times. Luckily with Type One diabetes the advancement of the medication meant that … Continue reading Life with T1D: What I have Lost and Gained
By Amber Carey-Daw I originally became a part time student in April 2018, just three weeks before the start of my GCSE exams. It wasn't an easy decision to make, as many told me it would be detrimental to my exam results, something that as a perfectionist meant alot to me. But as my at … Continue reading Being Part Time in Education
By Billie Rae How are you feeling today? This can be a pretty loaded question at the best of times, and during a global pandemic it’s often downright scary, as if someone just asked you for the meaning of life. ‘How are you feeling today? Yeah, not too bad, just trying to get on with … Continue reading Lessons From Lived Experience: Coping With Emotions
Hey everyone! So, this is my first ever blog so bare with me on how well I do! I’ll start off with telling you a bit about me. My name is Rebecca, I’m 17 and I’m from Leeds. I am currently in college doing a level 2 media makeup and hair course. Pretty easy. Kind … Continue reading Not having a diagnosis: Becca’s experience
This blog post features Beth, Laura, and Ally from LUNA talking together (on video call because of social distancing life!) about their experiences of being diagnosed with long term health conditions. They talk about how they found this, and the similarities and the differences in their experiences. What was your experience of getting a diagnosis? … Continue reading Diagnosis Experiences: A Conversation Between friends
I’ve always been a chatterbox. People are often amused by the pace at which I can talk and the sheer volume of conversation. I always put it down to being an extrovert, just something that was quirky about me. Even as a child I had no problem nattering away to unsuspecting adults. I’d never really … Continue reading Being diagnosed with ADHD as a young adult: Ella’s experience
What I Have Lost: Independence. Happiness. Sleep (lots of it). Friends, old and new. Security. Innocence. A feeling of self-worth. Trust (in myself). Time. So much time spent worrying about what was wrong with me, or whether anything was at all. Time in hospital. Time alone. Time being happy. Time feeling alive. Abilities. The ability … Continue reading Lost and Gained: Mirren
Hi, Heather here. This week we are all talking about what we have lost and gained through our experiences of ill health. Some of these might be focussed on positive life choices, but not mine. Background I was diagnosed with Lupus (SLE) almost exactly 7 years ago and despite numerous severe flares (and multiple weeks of … Continue reading Lost and Gained: Heather
What I've lost: independence. The ability to do something for myself. Yes I can still wash. Yes I can still dry but no I can’t cook my own meals and walk a few steps without falling. Spontaneity. Everything I do has to be planned,prepared and executed with the utmost precision. I can’t just pop to … Continue reading Lost and Gained: Jack
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