This blog post features Beth, Laura, and Ally from LUNA talking together (on video call because of social distancing life!) about their experiences of being diagnosed with long term health conditions. They talk about how they found this, and the similarities and the differences in their experiences. What was your experience of getting a diagnosis? … Continue reading Diagnosis Experiences: A Conversation Between friends
Tag: JRA
Lost and Gained: Beth
Having a long term chronic illness can result in feeling like you are ‘ losing’ lots of things. Being diagnosed at a young age perhaps lessens these feelings; growing up you only pick the things which you are capable of. For instance, I never really have engaged in sport, apart from climbing from time to … Continue reading Lost and Gained: Beth
Socialising- Some Top Tips! (2/3)
Socialising is a minefield for all young people; but as set out in our first post, its particularly tricky with a chronic illness or disability. However, with chronic illness and disability other challenges present themselves. For instance, for some people looking at bright screens may be difficult however friendship ‘group chats’, planning and networking all … Continue reading Socialising- Some Top Tips! (2/3)
Independence: Why Discuss it? (1/3)
So, why discuss it? Well, as a young person it feels like everyone is discussing it, your friends are moving on, starting their own lives, and constantly talking of their own ever increasing independence. However, when you have a chronic illness or a disability, then it is easy to feel conversations turning towards dependence for … Continue reading Independence: Why Discuss it? (1/3)




