Raising awareness of, and supporting, young people with long-term health conditions
by Regan (she/her) “the quality of being easily reached, entered, or used by people who have a disability” My name is Regan I’m 21 and would like to talk about the importance of accessibility to me on my journey living with Multiple Sclerosis. To me, accessibility means independence, it means freedom. Initially, when I was … Continue reading Accessibility and Me
By Aisling O'Connell Hello hello! As this is my first post for The LUNA Project (scary but mostly exciting) I’ll begin with a little intro about myself. My name is Aisling, I’ve recently turned 21 and I grew up in Greater London. I’m about to enter my fourth and final year studying Politics and Economics … Continue reading Navigating Friendships with Epilepsy
By Billie Rae How are you feeling today? This can be a pretty loaded question at the best of times, and during a global pandemic it’s often downright scary, as if someone just asked you for the meaning of life. ‘How are you feeling today? Yeah, not too bad, just trying to get on with … Continue reading Lessons From Lived Experience: Coping With Emotions
This blog post features Beth, Laura, and Ally from LUNA talking together (on video call because of social distancing life!) about their experiences of being diagnosed with long term health conditions. They talk about how they found this, and the similarities and the differences in their experiences. What was your experience of getting a diagnosis? … Continue reading Diagnosis Experiences: A Conversation Between friends
Hi, Heather here. This week we are all talking about what we have lost and gained through our experiences of ill health. Some of these might be focussed on positive life choices, but not mine. Background I was diagnosed with Lupus (SLE) almost exactly 7 years ago and despite numerous severe flares (and multiple weeks of … Continue reading Lost and Gained: Heather
I think that a year ago, if you had asked what I had lost and gained I would have struggled to think of what I had gained, and two years ago I would wonder why you were even asking. Now though, I feel able to think about the gains and see that they truly are … Continue reading Lost and Gained: Ally
Having a long term chronic illness can result in feeling like you are ‘ losing’ lots of things. Being diagnosed at a young age perhaps lessens these feelings; growing up you only pick the things which you are capable of. For instance, I never really have engaged in sport, apart from climbing from time to … Continue reading Lost and Gained: Beth
Hi! I’m Mirren, I’m 19 years old and I’m a Gaelic student at the University of Glasgow. I suffer from seizures, usually a few times a day, and while my doctors believe they’re caused by epilepsy they are still not sure. It’s been a year and a half since I was first hospitalised, and back … Continue reading In the Same Boat: Mirren’s Perspective
Last weeks post touched upon just how big a problem accessibility is, and how isolating and demoralising it can be for individuals up against it, and how widespread a problem it is in a way you may never have noticed. This makes having friends who both support you with this and share the anger and … Continue reading Accessibility: Being Part of The Solution (2/2)
So, what is accessibility. The dictionary definition of accessibility is ... ‘The quality of being able to be reached or entered’ However, accessibility can often be defined by what ‘inaccessibility’ means. Inaccessibility means being unable to go out alone due to cobbles, kerbs with no drop downs and degrading pavement stones. Inaccessibility is saying that … Continue reading Accessibility: A conversation we need to have. (1/2)
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