Raising awareness of, and supporting, young people with long-term health conditions
by Regan (she/her) “the quality of being easily reached, entered, or used by people who have a disability” My name is Regan I’m 21 and would like to talk about the importance of accessibility to me on my journey living with Multiple Sclerosis. To me, accessibility means independence, it means freedom. Initially, when I was … Continue reading Accessibility and Me
By Jenny Barron. Originally written as part of the Lost and Gained LUNA series. When I got diagnosed it felt like I had gained this huge weight of responsibility, like I had this massive load to carry around with me at all times. Luckily with Type One diabetes the advancement of the medication meant that … Continue reading Life with T1D: What I have Lost and Gained
By Aisling O'Connell Hello hello! As this is my first post for The LUNA Project (scary but mostly exciting) I’ll begin with a little intro about myself. My name is Aisling, I’ve recently turned 21 and I grew up in Greater London. I’m about to enter my fourth and final year studying Politics and Economics … Continue reading Navigating Friendships with Epilepsy
Image description: In a text box at the centre of the image the text reads 'CW: eating disorders, homophobia...Overshadowed: Eating Disorders and Homosexuality...Stand in solidarity with the LGBTQ Community' with a rainbow background and the LUNA logo in the bottom right corner The term ‘eating disorder’ is autological, it defines itself. Anyone who has frequent … Continue reading Overshadowed: Eating Disorders and Homosexuality
“When your lifestyle is your medicine, changes to it can have a big impact on your quality of life.” Three years ago, at the onset of her chronic health issues, Sasha Donovan-Anns had lost a quarter of her body weight; this sudden weight loss made her very weak, having a negative impact upon her attendance … Continue reading Living with Fibromyalgia in Lockdown
There is no question of why lockdown is difficult. It’s tough being isolated from friends, families and the outside world. Events, celebrations and other markers in our lives that give us structure and purpose have been disturbed or cancelled. Often the isolation, the empty days, and the spare hours leave us with our own company … Continue reading Lockdown Conversations: Ableism, Eating Disorders, and Crohns
By Billie Rae How are you feeling today? This can be a pretty loaded question at the best of times, and during a global pandemic it’s often downright scary, as if someone just asked you for the meaning of life. ‘How are you feeling today? Yeah, not too bad, just trying to get on with … Continue reading Lessons From Lived Experience: Coping With Emotions
Here is a round up of all of the recommendations, inspired by the idea of providing insight into aspects of life with a disability/chronic illness, that we made for April... Week 1. Wonder So what is it about? Auggie is 13. He likes spaceships, science and lives with his mum, dad and sister. Auggie also … Continue reading Book Club: April
Hey everyone! So, this is my first ever blog so bare with me on how well I do! I’ll start off with telling you a bit about me. My name is Rebecca, I’m 17 and I’m from Leeds. I am currently in college doing a level 2 media makeup and hair course. Pretty easy. Kind … Continue reading Not having a diagnosis: Becca’s experience
This blog post features Beth, Laura, and Ally from LUNA talking together (on video call because of social distancing life!) about their experiences of being diagnosed with long term health conditions. They talk about how they found this, and the similarities and the differences in their experiences. What was your experience of getting a diagnosis? … Continue reading Diagnosis Experiences: A Conversation Between friends
The LUNA Project Blog 