Raising awareness of, and supporting, young people with long-term health conditions
The loneliness that came with epilepsy is one of the things that has taken me most by surprise and that I have found the hardest to manage. I feel we all know the difference between emotionally and physically alone, but it feels an important difference to emphasise. Especially because I would be doing an injustice … Continue reading In the Same Boat: Ally’s Perspective
Hi! I’m Mirren, I’m 19 years old and I’m a Gaelic student at the University of Glasgow. I suffer from seizures, usually a few times a day, and while my doctors believe they’re caused by epilepsy they are still not sure. It’s been a year and a half since I was first hospitalised, and back … Continue reading In the Same Boat: Mirren’s Perspective
Loneliness is something that we tend to talk about purely in relation to elderly people, but it is something that can affect young people too. All young people experience feelings of loneliness; growing up involves lots of challenges: moving from school to university, changes in your support system, and new experiences that can be isolating. … Continue reading Loneliness; perspectives over time.
I was diagnosed with Ulcerative Colitis (UC) at the age of 16 after falling ill with my first flare. UC is a form of Inflammatory Bowel Disease (IBD) and is an inflammatory condition that causes ulcers, which can bleed and produce mucus, to form in the large intestine. It is currently incurable but can be … Continue reading IBD: Conversations with Friends
By Isobel Crossley When Ally, Beth and Ross first asked me if I’d like to write a post, I was originally hesitant as I didn’t think I really had a place to say anything due to not suffering from a long term health condition myself, but I do have a sister with a chronic illness … Continue reading IBD: A Sibling’s Perspective
Written by Jack Schofield P.E. two letters in succession which fill most able bodied people with dread. But those with physical disabilities a whole wave of emotions flood them. Hi, I’m Jack. I’m a part time – full time wheelchair user and have been since the age of 7. When I was in primary school … Continue reading What I have Gained: Disability Sport
So, what is accessibility. The dictionary definition of accessibility is ... ‘The quality of being able to be reached or entered’ However, accessibility can often be defined by what ‘inaccessibility’ means. Inaccessibility means being unable to go out alone due to cobbles, kerbs with no drop downs and degrading pavement stones. Inaccessibility is saying that … Continue reading Accessibility: A conversation we need to have. (1/2)
Hello! To finish off this month’s topic of socialising I (Ross) decided to do something a little different and ‘interview’ Ally and Beth. I asked them 4(ish) questions and they asked me a couple questions at the end, trying to gain a greater perspective on the issue. I’ve tried to highlight a few of the … Continue reading Socialising, A Conversation With Friends (3/3)
Socialising is a minefield for all young people; but as set out in our first post, its particularly tricky with a chronic illness or disability. However, with chronic illness and disability other challenges present themselves. For instance, for some people looking at bright screens may be difficult however friendship ‘group chats’, planning and networking all … Continue reading Socialising- Some Top Tips! (2/3)
Everyone knows socialising is important in maintaining friendships. In primary school your parents would encourage you to invite someone round and then they would return it and build the friendship, in high school going on those first trips shopping into town with friends was a bonding experience, and by the time you’re leaving school to … Continue reading Having a Social Life is Harder Than It Looks! (1/3)
The LUNA Project Blog 