Raising awareness of, and supporting, young people with long-term health conditions
Hey everyone! So, this is my first ever blog so bare with me on how well I do! I’ll start off with telling you a bit about me. My name is Rebecca, I’m 17 and I’m from Leeds. I am currently in college doing a level 2 media makeup and hair course. Pretty easy. Kind … Continue reading Not having a diagnosis: Becca’s experience
This blog post features Beth, Laura, and Ally from LUNA talking together (on video call because of social distancing life!) about their experiences of being diagnosed with long term health conditions. They talk about how they found this, and the similarities and the differences in their experiences. What was your experience of getting a diagnosis? … Continue reading Diagnosis Experiences: A Conversation Between friends
I’ve always been a chatterbox. People are often amused by the pace at which I can talk and the sheer volume of conversation. I always put it down to being an extrovert, just something that was quirky about me. Even as a child I had no problem nattering away to unsuspecting adults. I’d never really … Continue reading Being diagnosed with ADHD as a young adult: Ella’s experience
Hi! It feels very bizarre to introduce myself like this, but I’m Jamie, I’m 19, and I have OCD. I’ve been putting off writing this because I’m embarrassed both about having OCD and about being embarrassed. Go figure! In my title I’ve mentioned embarrassment and shame separately because in relation to my OCD, these two … Continue reading Obsessive Compulsive Disorder: stigma, embarrassment, shame.
What I Have Lost: Independence. Happiness. Sleep (lots of it). Friends, old and new. Security. Innocence. A feeling of self-worth. Trust (in myself). Time. So much time spent worrying about what was wrong with me, or whether anything was at all. Time in hospital. Time alone. Time being happy. Time feeling alive. Abilities. The ability … Continue reading Lost and Gained: Mirren
Hi, Heather here. This week we are all talking about what we have lost and gained through our experiences of ill health. Some of these might be focussed on positive life choices, but not mine. Background I was diagnosed with Lupus (SLE) almost exactly 7 years ago and despite numerous severe flares (and multiple weeks of … Continue reading Lost and Gained: Heather
What I've lost: independence. The ability to do something for myself. Yes I can still wash. Yes I can still dry but no I can’t cook my own meals and walk a few steps without falling. Spontaneity. Everything I do has to be planned,prepared and executed with the utmost precision. I can’t just pop to … Continue reading Lost and Gained: Jack
When I hear loss and gain I think more about sacrifices I have to make and how my experiences have changed my personality. When I was first diagnosed, it was all a bit dramatic and it wasn’t clear what my life would be like so at that stage, I hadn’t gained or lost anything. However, … Continue reading Lost and Gained: Kitty
I think that a year ago, if you had asked what I had lost and gained I would have struggled to think of what I had gained, and two years ago I would wonder why you were even asking. Now though, I feel able to think about the gains and see that they truly are … Continue reading Lost and Gained: Ally
When answering ‘what have I lost or gained because of disability?’ is difficult because I don’t have one. I have not had to deal with the struggles of diagnosis, hospital stays, and always putting my health before everything else – it hasn’t been central to my day-to-day life. I’ve never had to face the same … Continue reading Lost and Gained: Ross
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